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The United States Chronic Thromboembolic Pulmonary Hypertension Registry: Protocol for a Prospective, Longitudinal Study

The United States Chronic Thromboembolic Pulmonary Hypertension Registry: Protocol for a Prospective, Longitudinal Study

The United States Chronic Thromboembolic Pulmonary Hypertension Registry (US-CTEPH-R) is a contemporary CTEPH registry that will provide data for patients with CTEPH diagnosed between 2014 and 2018. Patient demographics, medical history, symptoms, timeline to diagnosis, risk factors, diagnostic approach, disease management, and long-term outcomes postintervention have been collected.

Kim M Kerr, C Greg Elliott, Raymond L Benza, Richard N Channick, Kelly M Chin, R Duane Davis, Sonia Jain, Andrea Z LaCroix, Michael M Madani, Vallerie V McLaughlin, Myung H Park, Victor F Tapson, William R Auger

JMIR Res Protoc 2021;10(5):e25397